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My experiences with Precordial Catch Syndrome.

posted Nov 01, 2012 16:44:48 by HillaryAkaneSotomayor
I've had this for as long as I remember.
When I was a kid, I would simply hold my breath and wait until it went away.
As I grew up and became more stressed I lost a lot of weight, and I found that with the more weight I lost, the more frequent and severe the attacks became.
It went from seconds/minutes, to half an hour, to a couple hours, and at one point, up to 4 days of frequent and consecutive attacks.
Sometimes I've had similar pains on my right side. Sometimes it would occur on the lower half of my ribcage on the left side. And sometimes, the pains would co-ordinate with my heartbeat, as if something is being affected nearby.
I've found that once I discovered the 'un-popping' sensation that comes with breathing in sharply while having an attack, it worked to stop the pain, but recently I've found even doing THAT has not been able to stop it at times.

Has anyone else experienced this before?
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1 reply
ColinStrook said Nov 10, 2012 17:44:41
I know exactly what you mean. I've never had an hour long episode, couldn't even imagine that. I had my first episode when I was about 13, didn't know what the hell it was, and passed it off as nothing. When the attacks began happen more often, I asked my mom about it, as a RN at the local hospital in our city, I figured she would know for sure what it was. She said it was probably just a muscle cramp or something. I would get the exact same pain as you described, sharp, constant pain, usually on the left side, but as the episodes increased, the pain would be completely random in location, right or left side, and if I exhaled or inhaled to quickly or deeply, the pain would be excruciating. The ONLY way I know of to relieve the pain is to stand completely still, SLOWLY inhaling until I felt the pain increase, trying to inhale a little more every breath, until the pain vanished.

The majority of my episodes last only last a few seconds to a few minutes, I think the longest episode I ever had was about 10 minutes, and it scared the hell out of me. My episodes ranged from everyday, to every other day, once a week, once a month, I sure you know what I mean. I still get them today, however they are more infrequent. I turned 27 this year, and STILL get them.

I have talked to many doctors, many nurses, and I have never known ANYONE who has experienced the same thing. Everyone I have ever asked about this, always just passed it off as a muscle cramp...or whatever...always OR WHATEVER. But I knew it couldn't just be random muscle cramps, because A: It has been happening for damn near 14 years now, and B: No one I have talked to had ever experienced the same thing, im pretty sure a lot of people know what a damn muscle cramp feels like.

I literally just found out about PCS. I have talked to countless doctors, looked all over the internet, and asked countless people about it. I have spent 14 years wondering if my damn heart would give out at any time, having no idea what it could be. It just pisses me off that EVERYONE just brushes it off. Sorry, had to vent a little. But seriously...14 YEARS? WTF.
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