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posted Jul 28, 2012 00:18:49 by Bonnie
I have had PCS since I was about 8, and am now 44. I still have the pain, though not as frequent as when I was younger. ALL three of my kids have this too. I've been examined by dr's in the past, they always said it was a muscle pain. So glad to have found these forums on this issue. I'm curious if anyone else has it running thru their family
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2 replies
ColinStrook said Nov 10, 2012 18:03:51
Thats very interesting about your children, I have found nothing, anywhere about PCS being hereditary. I had my first attack when I was around 13, I am 27 now and still have attacks. As far as I know, I am the only one in my family... well...I have actually never met another person who had experienced the same thing, until recently finding this forum. Its so frustrating having doctors pass it off as a muscle pain.

I joined the Army a few years ago, at the time my attacks were far and few between. I had a few attacks on patrol in afghanistan and told the medics about it, they told me it was probably just from wearing my body armor. I looked at the medic and asked him if he knew any other soldier that this had happened to, and said "no not really, that is kinda weird huh?" I have spent 14 years knowing that there was something different about me, not being able to relate to anyone, it feels SO GOOD to put a name to this.
BromeliaCarnivoraAmarokSilverwind said Dec 17, 2012 00:41:23
Well hello there!
I signed up just for this.
I'm nineteen years old and I've been suffering from PCS for as long as I can remember, though I've only just figured out it's actually a known syndrome.
I've never worried much about it though, because my father has these pains too, and he was always very chill about it.
I never even spoke about it with my doctor.

But as I said, my father has it too, and he told me his sister and my grandfather had it too.
I do think this thing is hereditary.
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